Sunday, December 13, 2009

Handicaps

Our good friend, Lao T just returned from CN where he was kind enough to take presents to our son. Dear brother that he is, he always makes it seem like trekking to the other side of one of the world's largest cities to drop some presents or letters to our little boy is no big deal. I have made the journey...and it is a huge deal Lao T. What a blessing to have that kind of a friend.
But, wait, there's more. No, Lao T didn't just drop the presents and run. He went in and spent some time videotaping and chatting. He helped FX read our letters and filmed his responses. He gauged whether or not FX had any idea of what was happening. He gathered info about FX's schooling and his spirits. and rather than just dumping us a tape, he is editing together the footage for us (which I hope we will be able to pass on soon.) Who has friends like that? Oh, we do.
During lunch today, our jet lagged friend was telling us about his trip. At one point in the conversation he turned to me and said, "by the way, he isn't handicapped. I don't think he thinks of himself as handicapped. He gets around everywhere he wants to go. And he directs the other children, taking care of them and telling them what to do."
Tell me about it. He is a most remarkable boy and we fell in love with him instantly. He spends much of his time out of his wheel chair and just rolls around (with lightning speed) to get where he is going. That is a huge part of why we need to renovate the house (or move). If he were just wheel chair bound, we could work out traffic patterns and furnishings. But in our cramped house, he would almost be entirely wheel chair bound because he could only roll a few feet in the living room and could never easily make it down the hall to his own room. Of course, as I write this I know that if this is the best we can do...he will adapt. Not because he has to settle, but because it is what he does. He is an overcomer. I don't want us to cramp or hinder him, but at the same time I know that he won't let himself be hindered...even if he is cramped.
And so, lest anyone think my son is handicapped, I present part two of our first meeting with FX so you can understand what a remarkable person he is. May we all be so handicapable.

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